Читать онлайн «Sick: A Memoir»

Автор Porochista Khakpour

Disclaimer

This book contains my personal story. I am not a medical professional, and, therefore, the inadvertent advice and information I share throughout this book is in no way intended to be construed as medical advice. If you know or suspect that you have a health problem, it is recommended that you seek the advice of your physician or other professional advisor before embarking on any medical program or treatment.

Dedication

To Voyce

& her honeybees

Epigraph

“Those great wars which the body wages with the mind a slave to it, in the solitude of the bedroom against the assault of fever or the oncome of melancholia, are neglected. Nor is the reason far to seek. To look these things squarely in the face would need the courage of a lion tamer; a robust philosophy; a reason rooted in the bowels of the earth. ”

—Virginia Woolf, On Being Ill

“Do you believe, she went on, that the past dies?

Yes, said Margaret. Yes, if the present cuts its throat. ”

—Leonora Carrington, The Seventh Horse and Other Tales

Contents

Cover

Title Page

Disclaimer

Dedication

Epigraph

Author’s Note

On the Wrong Body

Prologue

1: Iran and Los Angeles

2: New York

3: Maryland and Illinois

On Support

4: Los Angeles

5: New York

On Appearances

6: Pennsylvania

7: Santa Fe and Leipzig

On Place

8: Los Angeles

9: Santa Fe

On Being a Bad Sick Person

10: New York

On Love Lost & Found

11: Everywhere Else & Away

Epilogue

Acknowledgments

About the Author

Advance Praise for Sick

Also by Porochista Khakpour

Copyright

About the Publisher

Author’s Note

It seems impossible to tell this story without getting the few certainties out of the way, the closest one can come to “facts. ” The hardest part of living with Lyme disease for me has always been the lack of concrete “knowns” and how much they tend to morph and blur over the years, with the medical community and public perception and even within my own body. To pinpoint this disease, to define it, in and of itself is something of a labor already.

Still: Lyme disease is a clinical diagnosis, a disease that is transmitted by a tick bite.

The disease is caused by a spiral-shaped bacteria (spirochete) called Borrelia burgdorferi. The Lyme spirochete can cause infection of multiple organs and produce a wide range of symptoms. Less than half of Lyme patients recall seeing a tick bite, and less than half also report seeing any rash. (They say the deer tick—which is usually the carrier of Lyme—can present as smaller than a speck of pepper. ) The erythema migrans (EM) or “bull’s-eye” rash is considered the main sign of Lyme, but atypical forms of this rash are seen more frequently. Testing is quite flawed; the commonly used ELISA (enzyme-linked immunosorbent assay) screening test is unreliable, missing 35 percent of culture-proven Lyme disease. There are five subspecies of B. burgdorferi, over one hundred strains in the USA, and three hundred strains worldwide. Testing for babesia, anaplasma, ehrlichia, and bartonella (other tick-transmitted organisms) should always be performed as well, as coinfection with these organisms points to probable infection with Lyme and vice versa.